6/5/2025 – Recent PWS News

  • Saniona´s CMO on the FDA’s Orphan Drug Designation for Tesomet in Prader-Willi Syndrome

    Published: 1 day ago | (Link to Biostock)

    Saniona yesterday announced that the FDA has granted Orphan Drug Designation (ODD) for the drug candidate Tesomet in the treatment of Prader-Willi syndrome…

  • University of Haifa Study Finds Genetic Imprinting Key to Whether Rare Syndrome Causes Autism

    Published: 1 day ago | (Link to The Jewish Press)

    New research has uncovered how specific genetic variations determine whether individuals are more likely to develop autism-like traits or psychosis,…

  • Landmarks across the UK glow orange to spotlight rare genetic condition

    Published: 1 day ago | (Link to MSN)

    Landmarks including The Mersey Gateway Bridge, Cardiff Castle and London’s Tower 42 were among 17 buildings that glowed orange in support of Prader-Willi…

  • Glasgow boy with rare genetic condition kickstarts 2,500km relay race across the UK

    Published: 2 days ago | (Link to Yahoo News UK)

    A Glasgow boy who has a cerebral palsy and a rare genetic syndrome has kicked off a 2,500km relay across the UK in support of inclusivity in sport.

  • UK landmarks glow orange to raise awareness of rare genetic condition

    Published: 3 days ago | (Link to The Mirror)

    London’s Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green’s Windmill in Nottingham were among the buildings to ‘Glow Orange’ to highlight…

  • UK landmarks glow orange to raise awareness of rare genetic condition

    Published: 3 days ago | (Link to Daily Express)

    Some of the UK’s most iconic landmarks were aglow at the weekend to help raise awareness of a rare complex genetic condition.

  • Katie Price gives update on son Harvey’s course of Ozempic-style weight-loss jabs after revealing he now weigh

    Published: 3 hours ago | (Link to Daily Mail)

    The former glamour model, 47, previously revealed the 23-year-old son was going on the weight-loss injections in a bid to help improve his life,…

  • UK landmarks glow orange to raise awareness of rare genetic condition

    Published: 5 days ago | (Link to The Sun)

    Some of the UK’s most iconic landmarks were glowing orange last night – to raise awareness of a rare complex genetic condition that affects approxim.