5/15/2025 – Recent PWS News

  • Prader-Willi Syndrome Awareness Month in Illinois

    Published: 1 day ago | (Link to Radio Monmouth, IL)

    The Illinois Senate unanimously approved Senate Resolution 25, sponsored by Senator Neil Anderson (R-Andalusia), declaring May 2025 as Prader-Willi Syndrome…

  • Aardvark Therapeutics Reports First Quarter 2025 Financial Results and Provides Business Highlights

    Published: 1 day ago | (Link to TradingView)

    Phase 3 HERO trial of ARD-101 for the treatment of hyperphagia associated with Prader-Willi Syndrome (PWS); data readout expected in early 2026…

  • Local State Sen. Anderson Raising Awareness For Rare Genetic Disorder PWS

    Published: 11 hours ago | (Link to WRMJ)

    A Senate Resolution sponsored by local State Sen. Neil Anderson (R-Andalusia) declaring May 2025 as Prader-Willi Syndrome (PWS) Awareness Month was…

  • Soleno Therapeutics Announces Presentations Featuring VYKAT(TM) XR in Prader-Willi Syndrome at ISPOR 2025

    Published: 2 days ago | (Link to Yahoo Finance)

    REDWOOD CITY, Calif., May 13, 2025 (GLOBE NEWSWIRE) — Soleno Therapeutics, Inc. (Soleno) (NASDAQ: SLNO), a biopharmaceutical company developing novel…

  • Soleno Therapeutics Announces Presentations Featuring VYKAT(TM) XR in Prader-Willi Syndrome at ISPOR 2025

    Published: 2 days ago | (Link to Stock Titan)

    Soleno Therapeutics (NASDAQ: SLNO) announced two upcoming presentations at the ISPOR 2025 conference in Montreal, focusing on their drug VYKAT™ XR…

  • Waist-to-Height Ratio Predicts Heart Risk at Age 10 Years

    Published: 2 days ago | (Link to Medscape)

    MÁLAGA, Spain — Children with a gradually increasing waist-to-height ratio trajectory (a marker of central obesity) during the first decade of life show…

  • May is Prader-Willi Syndrome (PWS) Awareness Month

    Published: 3 days ago | (Link to NWI.Life)

    PWS affects about 1 in 15,000 births? These individuals can live full, happy, and engaged lives with early intervention and the right support.

  • Cognitive decline in an adult with ATR-16 syndrome due to an unbalanced translocation between 11p15.5 and 16p13.3: A case report

    Published: 3 days ago | (Link to Frontiers)

    Background: Chromosome 16p13.3 deletions cause a contiguous gene deletion syndrome, ATR-16 syndrome. The classic phenotype of ATR-16 syndrome includes…

  • Top-line Phase 3 trial data on PWS nasal spray expected this year

    Published: 3 hours ago | (Link to Prader-Willi Syndrome News)

    Top-line data from a Phase 3 trial of ACP-101, Acadia’s nasal spray for hyperphagia in Prader-Willi syndrome, are now expected this year.

  • Finding Joy in the Journey — Paige Rivard

    Published: 6 days ago | (Link to Prader-Willi Syndrome News)

    Paige Rivard is the former CEO of the Prader-Willi Syndrome Association and a mom to her son, Jake, who is living with two rare genetic disorders:…